Last Saturday, the Good Market at Colombo Race Course saw some like-minded people joining hands — all for four-year-old  Lisath Chathmin Nanayakkaara. Lisath was diagnosed with a genetic condition called Thalassemia Major, when he was two months old and has been undergoing blood transfusions every fortnight since then. The only permanent solution to this condition [...]

The Sunday Times Sri Lanka

Ghedora-Connects: The voice of the voiceless

This charitable community is currently putting its mite behind helping a young boy who needs a bone marrow transplant
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Singing for a cause- to help save Lasith. Pix by Amila Gamage

Last Saturday, the Good Market at Colombo Race Course saw some like-minded people joining hands — all for four-year-old  Lisath Chathmin Nanayakkaara.

Lisath was diagnosed with a genetic condition called Thalassemia Major, when he was two months old and has been undergoing blood transfusions every fortnight since then. The only permanent solution to this condition is a bone marrow transplantation.

The event, Help Lisath Live – a new life, saw performances by popular singers Lahiru Perera, Dushyanth Weeraman, Stephanie Siriwardane and  bands Kurumba and Magic Box Mix Up. The amount collected, which was about Rs 200,000 will go to the charity fund for Lisath’s bone marrow transplantation, which will be done at the Rajiv Gandhi Hospital, India.

Ghedora-Connects, a team that aims to voice the cause of the voiceless was behind the fund-raiser. The team started with a facebook page made up by a few people from Colombo, who were trying to make a change in whatever possible way they can. But this small charitable community outfit has already accomplished many fundraising charity programmes.

“We had realized that many individuals want to help others more but they don’t have time or a reliable source to do so. Most people would rather help smaller projects that are being personally monitored. This is exactly what we do with our small team,” said Sugala Senanayake, of Ghedora-Connects.

Little Lasith

Lisath is an only child and his mother Erandhika Dayaratne has been bravely battling to keep him going.

The total cost of this operation along with the post surgery recovery period of one month comes to a total of INR 25 lakhs. Currently Erandhika needs Rs1.5 million for the transplant surgery.

For more information on how to help Lisath,
please call 072 8533014
or email Sugala on
sugarlah87@gmail.com.
She will be able to direct you to Lisath’s doctor at Rajiv Gandhi Hosptial,
India.

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